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Teen Talk Study
In 2024–2025, we listened to 40 siblings from across Australia share their experiences of family life and social connection. Most had a brother or sister with developmental disability, and others did not. Together, they offered open and thoughtful reflections on roles and responsibilities at home, friendships, fam
Towards evidence based care for Rett syndrome: a research model to inform management of rare disorders
Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
Using ambulatory monitoring to investigate awake breathing irregularities in Rett syndrome in Australian population-based and Italian clinic samples
Helen Jenny Leonard Downs MBChB MPH BApplSci (physio) MSc PhD Principal Research Fellow Head, Child Disability +61 419 956 946 08 6319 1763
Melissa Cleary
PhD Candidate
Carolyn Drummond
Research Officer
Kate Dorozenko
Senior Research Officer
Professor Jenny Downs
Head, Child Disability
Dr Emma Glasson
Senior Research Fellow