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We want to hear from siblings living outside of Australian cities!
Participate in The Sibling Snapshot Project! <!-- [if gte mso 9]> <![endif]--> <!-- [if gte mso 9]> Normal 0 false false false EN-AU X-NONE X-NONE <!
Be involved in the Sibling Snapshot Project! Researchers from The Kids Research Institute Australia are conducting research which explores the unique
Join a Focus Group for the Sibling Support Study! Researchers from The Kids Research Institute Australia are conducting research which explores the
In 2024–2025, we listened to 40 siblings from across Australia share their experiences of family life and social connection. Most had a brother or sister with developmental disability, and others did not. Together, they offered open and thoughtful reflections on roles and responsibilities at home, friendships, fam
The purpose of this work was to revise and clarify 2002 consensus criteria for the diagnosis of RTT in anticipation of treatment trials.
This study investigated the nature and prevalence of atypical pain responses in Rett syndrome and their relationships with specific MECP2 mutations.
Stereotypic hand movements are a feature of Rett Syndrome but few studies have observed their nature systematically.