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The association between behaviour and genotype in Rett Syndrome using the Australian Rett Syndrome Database
This study compared the behavior profile of cases in the Australian Rett Syndrome Database (ARSD) with those in a British study using the Rett Syndrome...
QI-Disability
The Quality of Life Inventory - Disability
ASCEND
AuStralian Collaboration to Enhance Neuro-Development
The Sibling Project
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Meaningful change for people with Developmental and Epileptic Encephalopathy
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Research Advisor Application
Guide our sibling research!
Be a Research Advisor!
Guide our sibling research!
Rural Cancer Siblings
We want to hear from siblings living outside of Australian cities!
Sibling Support and Teen Talk Studies
Sibling Support and Teen Talk Studies form
