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Complex health needs of Indigenous children are being fast-tracked by a unique project designed to reduce red tape and deliver timely paediatric services.
Born two weeks early, six-month-old Braxton Lewis’ entry to the world could have been vastly different if not for a service dedicated to improving pregnancy outcomes for Aboriginal women in WA’s East Pilbara.
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For pregnant Aboriginal women living in WA’s East Pilbara, significant issues systematically impede their pregnancy journey and a safe and healthy start to life for their babies.
Early in the consultation phase of the project, local Elders through Hedland Aboriginal Strong Leaders, education representatives and others identified that vulnerable families needed help navigating and accessing local support services that were already available in Port Hedland.
In this The Kids Research Institute Australia subsite, our Rett syndrome research team manages a national and international database of Rett syndrome.
Publications from 2017 dating back to 2004 of CDKL5 researchers.
We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.
This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation
We interviewed 17 parents with a daughter with Rett syndrome to gain their perspectives on how their daughter communicates and barriers.