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Research
A core outcome set to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsyAim: To: (1) develop a core outcome set (COS) to assess chronic pain interference and impact on emotional functioning for children and young people with cerebral palsy (CP) with varying communication, cognitive, and functional abilities; (2) categorize the assessment tools according to reporting method or observer-reported outcome measures; and (3) categorize the content of tools in the COS according to the International Classification of Functioning, Disability and Health (ICF).
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A Multisite Randomized Controlled Trial of Hand Arm Bimanual Intensive Training Including Lower Extremity for Children with Bilateral Cerebral PalsyTo test the efficacy of Hand Arm Bimanual Intensive Therapy Including Lower Extremity (HABIT-ILE) to improve gross motor function, manual ability, goal performance, walking endurance, mobility, and self-care for children with bilateral cerebral palsy.
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"Capturing the magic": identifying the active ingredients of a physical activity participation intervention for children and youth with disabilitiesThis study aimed to define the active ingredients of a participation-focused physical activity intervention for children and youth with disabilities.
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Common data elements to standardize genomics studies in cerebral palsyTo define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.
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Measurement properties and feasibility of chronic pain assessment tools for use with children and young people with cerebral palsyChronic pain assessment tools exist for children, but may not be valid, reliable, and feasible for populations with functional, cognitive or communication limitations, for example, cerebral palsy (CP). This study aimed to (i) identify chronic pain assessment tools used with children and young people and rate their measurement properties; (ii) develop a CP specific feasibility rating tool to assess the feasibility of tools in CP; and (iii) categorise tools according to reporting method.
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Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage studyThe aim of this study is to generate new knowledge about the aetiologies of CP through a focused investigation into the role of congenital anomalies
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Epidemiology of the cerebral palsiesEpidemiology of CP aims to describe the frequency of the condition in a population and to monitor its changes over time
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How low can we go? Recognizing infants at high risk of cerebral palsy earlierThis paper is a timely reminder that we must recognise infants at high risk of cerebral palsy earlier using evidence-based assessments.
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Prenatal factors in singletons with cerebral palsy born at or near termThis article discusses the prenatal factors in singletons with cerebral palsy born at or near term.
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An exploration of cerebral palsy aetiology: assisted reproductive technology and congenital anomaliesThis project will explore in detail the role of two known risk factors for cerebral palsy: assisted reproductive technology and congenital anomalies.