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Common data elements to standardize genomics studies in cerebral palsyTo define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.
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Risk of Developmental Disorders in Children of Immigrant Mothers: A Population-Based Data Linkage EvaluationIncreased risk of autism spectrum disorder with intellectual disability and cerebral palsy with intellectual disability for mothers of some foreign-born groups
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Comprehensive investigation of congenital anomalies in cerebral palsy: Protocol for a European-Australian population-based data linkage studyThe aim of this study is to generate new knowledge about the aetiologies of CP through a focused investigation into the role of congenital anomalies
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Epidemiology of the cerebral palsiesEpidemiology of CP aims to describe the frequency of the condition in a population and to monitor its changes over time
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Measurement properties and feasibility of chronic pain assessment tools for use with children and young people with cerebral palsyChronic pain assessment tools exist for children, but may not be valid, reliable, and feasible for populations with functional, cognitive or communication limitations, for example, cerebral palsy (CP). This study aimed to (i) identify chronic pain assessment tools used with children and young people and rate their measurement properties; (ii) develop a CP specific feasibility rating tool to assess the feasibility of tools in CP; and (iii) categorise tools according to reporting method.
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Hospitalizations Following Complex Hip Surgery in Children with Intellectual Disability: A Self-Controlled Case Series AnalysisTo evaluate the associations between complex hip surgery and subsequent hospitalizations in children with intellectual disability, including a subset of children with cerebral palsy.
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An exploration of cerebral palsy aetiology: assisted reproductive technology and congenital anomaliesThis project will explore in detail the role of two known risk factors for cerebral palsy: assisted reproductive technology and congenital anomalies.
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What constitutes cerebral palsy in the twenty-first century?The aims of this paper were to (1) define inclusion/exclusion criteria that have been adopted uniformly by surveillance programmes and identify where...
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Collaborating with consumers: the key to achieving statutory notification for birth defects and cerebral palsy in Western AustraliaThe Western Australian Birth Defects Registry and the Western Australian Cerebral Palsy Register used multiple sources of voluntary notification without...
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A systematic review of risk factors for cerebral palsy in children born at term in developed countriesThe aim of this study was to conduct a systematic review in order to identify the risk factors for cerebral palsy (CP) in children born at term.