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We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim to translate our research into resources to support families, carers and clinicians.
The Sibling Project focuses on the wellbeing, relationships and needs of children, adolescents and emerging adults who have a sibling with a developmental disability.
Developmental and epileptic encephalopathy (DEE) conditions are rare, and most have a genetic cause.
Principal Research Fellow
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.
About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases.
A severe neurodevelopmental disorder mostly affecting girls.
There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability
For mothers with intellectual disability, modifiable risk factors for adverse outcomes need addressing
People with intellectual disability fall at a younger age compared with the broader community