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The purpose of this study was to describe qualitatively the experience of parenting for mothers of a child with Down syndrome and to explore spirituality.
Leisure participation for school-aged children with Down syndrome.
Government early intervention services for children with intellectual disability (ID) in Western Australia have adopted the model of family-centred care.
Rates of Down syndrome (DS) show considerable international variation, but a systematic assessment of this variation is lacking.
The aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
Principal Research Fellow
A project led by The Kids Research Institute Australia’s child disability team will seek to reduce potentially preventable hospitalisations and build health literacy for children and young people with intellectual disability.
Children with intellectual disability who underwent gastrostomy – a feeding tube placed into the stomach – had better overall health and fewer hospitalisations for all causes except acute respiratory illnesses, research led by The Kids Research Institute Australia has found.
Nine out of ten incarcerated youth examined by The Kids researchers as part of a ground-breaking study had some form of neuro-disability.