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One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.

About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases.

A severe neurodevelopmental disorder mostly affecting girls.

There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability

For mothers with intellectual disability, modifiable risk factors for adverse outcomes need addressing

People with intellectual disability fall at a younger age compared with the broader community

The IDEA system is a valuable resource to address the needs of people living with intellectual disability

Synthesized findings demonstrate that people with intellectual disability, who live in community or residential settings, may fall more frequently, and at a younger age

This study describes how an informed consent process was developed for people with intellectual disability and how it is working in a current study

We aimed to review original research which described factors impacting the health of primary care-givers of children with Autism or Intellectual Disability