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A project led by The Kids Research Institute Australia’s child disability team will seek to reduce potentially preventable hospitalisations and build health literacy for children and young people with intellectual disability.
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.
About 2 per cent of children are estimated to have an intellectual disability. The cause of the condition is unknown in at least 50 per cent of cases.
A severe neurodevelopmental disorder mostly affecting girls.
Government early intervention services for children with intellectual disability (ID) in Western Australia have adopted the model of family-centred care.
Rates of Down syndrome (DS) show considerable international variation, but a systematic assessment of this variation is lacking.
The aim of this study was to examine trends of Down syndrome (DS) in relation to maternal age and termination of pregnancies (ToP) in 20 registries
This study describes the impact of having a sibling with Down syndrome or Rett syndrome using a questionnaire completed by parents.
There is an urgent need to develop high-quality falls prevention services for older adults with intellectual disability
For mothers with intellectual disability, modifiable risk factors for adverse outcomes need addressing