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Many girls and women with Rett syndrome experience seizures. We wanted to know if there were any factors that influenced the age when seizures first developed.
We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.
Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.
Involving those who live with T1D or care for a child who lives with T1D is a primary focus for the Centre. This lived experience integral to making sure the research our Centre does is relevant and outcomes create meaningful impact for how they manage the condition on a day-to-day basis.
Consumer Representative Spotlight - Duncan Read
Meet Emme-Lotte our Research Intern
The Rio Tinto Children’s Diabetes Centre; a JDRF Global Centre of Excellence announces $60,000 in new round of seed grants for researchers dedicated to type 1 diabetes. Three researchers from across Australia have received up to $20,000 to advance their research projects in type 1 diabetes (T1D).
The PCH Diabetes Clinical team will again be collecting T1DAL surveys between June and July 2024, followed by PAID between November 2024 and January 2025.
If you, or your child is aged between 2 – 18 years and has type 1 diabetes, we invite you to complete a few questions to help us see how you manage your hypos at home.
Anyone attending a Continuous Glucose Monitoring (CGM) start at PCH recently will have been offered the chance to use our new Virtual Reality googles also known as ‘SmileyScope’.